Report:
Global Holistic Health Summit
Bangalore,
India
January 12 -17, 2003
Kim
A. Jobst
THE
JOURNAL OF ALTERNATIVE AND COMPLEMENTARY MEDICINE
Volume
5, Number 6, 1999, pp. 495-502
Mary
Ann Liebert, Inc.
EDITORIAL
Diseases
of Meaning, Manifestations of
Health, and Metaphor
The
biggest disease today is not leprosy or tuberculosis, but rather
the
feeling of being unwanted, uncared for and deserted by everybody
-
Mother Theresa of Calcutta (1910-1997)
The
Observer, October 3, 1971, London United Kingdom
"Unipolar
major depression will be the world's second most debilitating
disease by 2020.
As
a cancer is a malignant growth, so depression is a malignant sadness."
W.
Christopher Murray Head of Epidemiology, World Health Organization
The
Economist, December, 19, 1998
ABSTRACT
Disease and health are commonly thought of as distinct opposites.
We propose a different view in which both may be seen to be facets
of healthy functioning, each necessary for the other, each giving
rise to the other. Thus, disease may be thought of as a manifestation
of health. It is the healthy response of an organism striving
to maintain physical, psychologic, and spiritual equilibrium.
Disease is not necessarily to be avoided, blocked, or suppressed.
Rather, it should be understood to be a process of transformation.
The process should therefore be facilitated because it is an integral
part of the dynamic equilibrium that we ordinarily think of as
health. In many cases, perhaps all, people get ill because there
is something going "wrong" in their lives. This could
occur in a whole range of ways relationships, environment,
food, or job. Our view, however, is that disease is a meaningful
state that can inform health workers how to help patients to heal
themselves. In this way, instead of being meaningless, people's
problems become diseases of meaning, enabling people to see that
things are not necessarily "going wrong" but are, in
fact, helping them become stronger, to live more fully and with
more understanding. Seen from this perspective, depression; cancer;
heart disease; neurodegenerative and autoimmune disease; dementia;
and conditions such as community violence, genocide, and the problem
of environmental devastation are "diseases of meaning."
World Health Organization forecasts make it clear that diseases
of meaning will continue well into the next millennium to be the
major cause of suffering and death worldwide. To deal with them,
the world needs to reformulate the biomolecular paradigm that
has been exploited in the last two centuries. It does not address
the reasons why these diseases arise, attending mainly to their
molecular consequences. A paradigm that includes the importance
of meaning must now be given top priority. The concept that diseases
are a manifestation of healtha call to a different relationship
with ourselves and our environment, both animate and inanimate
is in itself a different approach. Programs for care and education
based upon it would have immediate application in medicine, industry,
education and ecology. We believe that this model would have far-reaching
consequences for the understanding, treatment, and prevention
of diseases and behaviours that lead to violence and environmental
destruction.
In the fall of 1998, a small group of medical care professionals,
business people, biomedical researchers, and futurists, met at
the Institute for Alternative Futures (IAF) in Washington, D.C.,
to explore in depth some of their emerging ideas on the origin
and causation of disease and their implications for research,
practice, and policy. These ideas, expressed in the title of this
paper, were explored further with a group of professionals from
medicine, science, industry, government, education, healing ministries,
commerce, and management, at Dartington Hall in Totnes, England,
United Kingdom, in June 1999.
In part, these ideas reflect the rising prevalence of chronic
physical, mental, spiritual, behavioural, and social pathologies,
which we have called "diseases of meaning." This term
reflects a functional shift in perception whereby disease can
be seen and acknowledged to be a manifestation of health rather
than some alien entity afflicting, or seeking to destroy, the
individual or community. Its meaning is neither arbitrary nor
random. It draws attention to our restricted understanding of
disequilibrium, be it physical, perceptual, or spiritual. Disease
is seen to be the healthy expression of a restricted sense of
meaning or understanding in life, often with roots in a person's
distant past, or that of their family, their genetic heritage.
There is evidence from two important arenas. First, there is the
increasing interest by people in formal and in informal spirituality,
affirming the importance of meaning to health status and to ecologic
and industrial practices (Larson et al 1997). Second, there
is the growing interest by the public, health care professionals,
and policy makers in the integration of different forms of medicine
and approaches to health care (Coates and Jobst, 1998; Eisenberg
et al., 1993; MacLennan et al, 1996; MacLeod and Macintosh, 1998;
IAF, 1998; Gaier, 1998) along with an exponential growth in access
to, and use of, health information resources online, particularly
those about complementary and alternative medicines (CAM) (Gruner,
1999; Price, 1999). Furthermore, those individuals who are seeking
CAM help hold different view's, not only about the meaning of
their diseases, but also about their relationships with practitioners
(Cassidy, parts I and II, 1998).
Public health policies and medical science have enabled people
in affluent cultures to survive acute threats to health, only
to go on to suffer chronic physical and psychiatric illness and
the prolongation of life, irrespective of its quality. The term
diseases of meaning is proffered to describe these globally prevalent
diseases. They include depression, cancer, heart disease, neurodegenerative
and autoimmune disease, and dementia, but also encompass such
conditions as community violence, genocide, and the problem of
environmental devastation. However, the dominant concepts and
policies in science, medicine, and politics will perpetuate and
continue to be reservoirs for these conditions unless, and until,
the importance of meaning to the quality and expression of human
life in health and disease is understood.
Depression is perhaps the most graphic paradigm example. The Economist
reported in December 1998 that 330 million people now suffer depression
worldwide. Ten to twenty percent (10-20 %) of people in the world's
population will develop depression at some point during their
lives. According to the head of epidemiology at the World Health
Organization, (Murray and Lopez, 1996; The Economist, 1998) unipolar
major depression will be the world's second most debilitating
disease by 2020, eclipsed only by heart disease. The rising prevalence
of depression feeds a $7-billion market for antidepressant drugs,
led by Eli Lillys Prozac, which earned the company $2.6
billion in 1998. A Massachusetts Institute of Technology study
determined that, in the United States alone, depression costs
society $44 billion per year of which $12.4 billion is for treatment
and $7.5 billion for the economic costs of suicide. The remainder
represents the cost of lost productivity. (The Economist, 1998).
Adverse drug-related reactions and fatalities from routine "therapeutic
pharmaceutical interventions follows close behind (Lazarou et
al., 1998). Thus, "intended interventions" have become
one of the most significant factors affecting health. They alter
the relative importance of heredity, environment, and behaviour.
Thus, although unintended, many of this epoch's diseases are the
direct results of the intellectual, social, economic, and political
forces, or consciousness, which created greater affluence and
knowledge: i.e., they are diseases of meaning.
How did this come about? Many forces contribute to causing diseases
of meaning and a lack of aspirational/inspirational health. Here,
we cite six major causes. First are the unintentional consequences
of imperfect social, economic, and political policies. Second,
the accelerated technological development of society, which, while
freeing many people from the burdens of physical toil and historical
circumstances, nevertheless gives rise to alienation. Third is
the intentional manipulation of scientific, social, economic,
and political systems, sustaining ignorance of meaning in systems
for health for financial and political motives. Fourth is the
focus on the individual at the cost of the sense of meaning inherent
in an inclusive local or global community. Fifth is the neglect
of the contribution of environment to health and the relationship
of human beings to other life forms in the biosphere. Sixth, and
perhaps most important, is our conditioning. We are conditioned
to see disease as something bad, to be gotten rid of, eradicated,
fought against, blocked, and beaten. This is the case for the
many conditions listed above. However, this can be countered.
Disease can, instead, be viewed as the healthy response by which
the organism builds immunity and sequesters toxicity, be that
environmental, chemical (nutritional and genetic), or psychologic
and spiritual. Seen thus, not only is the process of disease someone's
way, physiologically, to restore balance and to heal, but this
process also reflects a person's sense of meaning, positive or
negative.
For example, any stimulus that evokes fear will cause systemic
physiologic changes. If perpetuated, the chronic changes may be
reflected somatically in a host of disease states ranging from
hypertension and migraine, to cancer, bowel disease, premenstrual
tension, immune disturbances, and arthritis. The meaning for individuals
of any event or stimulusfrom seeing a black crow on the
horizon or a raised hand or hearing the sound of a pistol to realizing
the implications of pesticides in fruit or genetic modification
of foodshas real psychophysiologic consequences. Thus, what
is perceived to be disease reflects the internalization of the
metaphors adopted by individuals and communities. High blood pressure
is a good example. The stress that has given rise to manifestation
of disease in one person may be the source of well-being in someone
else. In the one, the metaphor is one of threat whereas, in the
other, it is one of creative challenge and hope.
Most often, this process is unconscious. However, if it can be
brought to awareness, it can enable people to progress beyond
their current physical states. More importantly, it can help to
further their mental and/or spiritual understanding. This would
give people more insight, knowledge, and wisdom. In other words,
awareness of this process would shift their consciousness to enable
disease to be seen as a manifestation of health, a change in perspective
that totally alters the relationship of the individual and health
care workers to the whole process of disease (Jobst, 1990; MacLeod
and Macintosh, 1998). This can lead to profound changes in psychosomatic,
and therefore physiologic, processes and applies equally at individual,
community, and global levels. It reflects a drive inherent in
the disease process itself to generate positive individual and
social attitudes. This process we suggest should be called "aspirational
or inspirational health." The proposition that disease is
a manifestation of health links diseases of meaning and aspirational
health creatively: aspirational health being the means of transformation
of diseases of meaning through changes in understanding and perception
and consequently changes in behaviour, relationships, and physiology.
This idea offers insights for the prevention and treatment of
all diseases. Critical to the negative spiral that gives rise
to the diseases of meaning listed above, is the perception that
the "disease" (the origins of which may be social, industrial
or ecologic, as well as being medical/physiologic) is unavoidable
and can only to be remedied by being excised, eradicated, pharmacologically
blocked, or genetically modified. Our experience is that, if this
perception can be transformed, a totally different healing scenario
emerges. There is growing evidence for this with far-reaching
consequences for education, practice, and policy, whether in health
care, industry, politics, or ecology (Bodian, 1991; Brown, 1998;
Dethlefsen and Dahlke, 1990; Dossey, 1993, 1999; Fulder, 1996;
Gaier, 1998; Harrison, 1990; Jobst, 1997, 1998; Kearney, 1997;
Kabat-Zinn, 1991; MacLeod and Macintosh, 1998; Ornish, 1991; Oz,
1998; Schulz, 1998, Spiegel et al., 1989; Watkins, 1997; Whitehouse
et al 1999).
Why, in the most advanced, affluent, educated, and liberal era
of history are people so ill with chronic and largely incurable
diseases? Although, in part, this is because of ageing and increased
longevity, this is not the whole story. The work of the psychiatrist
Victor Frankl (Frankl, 1988, 1998) and the architect and leadership
consultant Roger Fritz (Fritz, 1991) provide some insight. From
his time in concentration camps. Dr. Frankl concluded that it
was having a sense of meaning that determined survival. This led
to his developing logotherapy (Frankl, 1988). Mr. Fritz developed
the idea of "empowering" and "disempowering"
systems operating to determine behaviour and outcome in individuals
and communities. Empowerment occurs when aspirations include a
sense of meaning and the will to create a preferred future. This
arises from, and is sustained by, "profound learning."
Profound learning occurs as a result of exchanges, often frictions
(suffering), between circumstances and aspirations, which lead
to changes in understanding about how the world works and about
essential human values and feelings (MacLeod and Macintosh, 1998).
When aspirations embrace individual and global well-being, these
goals generate aspirational health, one of the hallmarks of which
is a positive view of the future. Disempowerment therefore, is
a fundamental disease of meaning and the cause of many others.
It occurs when inner and/or outer circumstances prevent aspiration
and learning. When this happens, feelings of hurt, fear, guilt,
pain, and hopelessness (i.e., negative meaning) emerge instead
of creative growth. Then, individuals and communities seek only
to escape as rapidly as possible. Short-term solutions and avoidance,
even self-destruction, become the only aspiration, because of
this restriction of meaning. Paradoxically, these diseases of
meaning are nevertheless healthy responses. They are symptoms,
alerting mechanisms to the restrictions, the consequences of more
primitive meaning, and the need for its transformation, just as
hunger drives someone to search for food. In other words they
are the only way that the organism can manifest, given its existing
level of understanding and consciousness. However, the miracle
is that when disease is seen for what it is, the level of consciousness
changes.
Such a perceptual shift, on its own, may sometimes cure the problem,
by prompting radical
changes
to behaviour. Thus, depression does not merely reflect disease
in a negative sense. Instead, it reflects the healthy psychospiritual
and physiologic responses within the individual to unconsciously
held, destructive, and disempowering meanings from which there
appear to be no escape. A change in perception, of meaning, can
totally transform the landscape in much the same way that the
infinitesimal exposure to light transforms a photographic plate,
or the way an enzyme affects the reaction it catalyzes. Just as
the catalyst is not changed, neither are the circumstances causing
the disease of meaning. But the response of the organism, the
symptoms of disease, may alter profoundly, sometimes disappearing
altogether, so that what was once destructive becomes a source
of life, growth, and vigour. We believe that the widespread and
largely unconscious adoption by individuals, communities, and
societies of disempowering paradigms are the primary "pathogens"
of diseases of meaning. Because of them, disease and death are
perceived to be failures, rather than opportunities to learn,
evolve, and grow not only physiologically but more importantly
in being and understanding, as well (Kearney, 1997).
Furthermore, diseases of meaning are not succumbing to treatment
with biomedical, behavioral, or social science approaches. Even
the concept that breakthroughs in biomolecular and genetic intervention
will permit lasting solutions to acute and chronic medical problems
has the inescapable seed of disease within it. Not only is the
current pharmacologic and biomolecular paradigm the cause of a
huge disease burden (Lazarou et al., 1998), but the consciousness
of such thinking inescapably gives rise to fresh diseases by paying
no attention to meaning. Witness the evolution of bacterial resistance
to antibiotics, tolerance to antidepressants and antipsychotic
treatments, and the growing recreational use of drugs. We should
be investigating why one person becomes infected when others around
that individual are not, when, to all intents and purposes, they
are similar? The proposition here is that perceived meaning and
the way it affects how life is lived is at the root of all disease.
While biomedical science will find genetic dimensions to depression,
substance abuse, and violence, we cannot ignore that social and
cultural factors are critical contributors and that non-molecular
or pharmacologic, extrinsic intervention can ameliorate and cure
disease. This is only a matter of perception, however, for ultimately
all interventions, whether through changes in perception and meaning
or whether through pharmacologic or even surgical methods, are
ultimately manifested in molecular and chemical changes. There
is no thought, feeling, or perception without molecular and chemical
reaction and change. Thus, diseases of meaning are manifestations
of health, i.e., they are healthy protective or alerting responses,
arising to protect individuals and communities ultimately by leading
to the transformation of meaning.
Clearly, then the complex human adaptive system can either give
rise to diseases of meaning or to aspirational health, depending
on the scope and context of perceived meaning. Our current approaches
in science, medicine, and policy do not address diseases of meaning
adequately because proponents of these approaches are not asking
questions that will create aspirational health and transform meaning.
Rather than being empowering, the exponential growth of information
and knowledge, but not wisdom, disempowers the majority. Witness
the stranglehold desired by the major industrial conglomerates
such as Monsanto, in close alliances with governments, through
the creation of genetically engineered terminator seeds (The Ecologist,
1998) or the emergence of new and sometimes fatal diseases, such
as human bovine spongiform encephalopathy ("mad cow"
disease). It is not enough simply to unravel the human genome.
We must ask in addition what it means to understand the human
genome, what it might mean to manipulate and propagate fundamental
coded genetic changes in a matter of seconds, in a virtually infinitely
complex and interconnected system that has taken millions of years
to evolve. In this context, the concept of diseases of meaning
recognizes not only psychophysical but also psychospiritual etiologies
in the causation of disease that, like micro-organisms, can be
transmitted.
For the most part, our institutions have no psychospiritual evolutionary
perspective with which to create aspirational health and to understand
and work towards treating diseases of meaning (Stevens and Price,
1996). Although some people do recognize the need for a broader
perspective (Whitehouse et al., 1999; MacLeod and Macintosh, 1998),
it is our contention that the current "Western," scientific,
reductionistic approach is inevitably blind to the dimension of
meaning in human experience. The "medicalization" of
diseases of meaning ensues, an example being the search to "find
the gene" or "design the drug" to disrupt the disturbance,
ignoring the inherent power of a change in meaning to alter the
individual's biochemistry and physiology by itself. What one seeks
to treat is ultimately the chemical/molecular manifestation of
the way someone sees and interprets things. The argument is that,
if this perception were understood and transformed early enough,
the situation might even be prevented. Thus, the perspectives
of our institutions are integral to the problem (MacLeod and Macintosh,
1998). They reinforce a system of values that cannot allow people
to appreciate the significance or meaning of inspirational health.
Instead our institutions train health professionals, industrialists,
and policy makers to address all pathologies as if they were physically
caused without recognition for the central importance of meaning
to their causation.
So what can be done? The future may be influenced by some current
trends, such as the growing interest in integrative health care
(Coates and Jobst, 1998; IAF, 1998; Jobst and Stacey, 1998; Jobst
1998), the "re-spiritualization" of people and industry
(Larson et al., 1997), the increasing awareness of the interconnectedness
of the environment and health from global to individual levels,
the "shrinking" of the world via telecommunications
and computers, the growing body of literature that can be marshalled
to explore diseases of meaning (Dethlefsen and Dahlke, 1990; Dossey,
1993, 1999; Frankl, 1988; Hahnemann, 1996; Harrison, 1986; Kabat-Zinn,
1991, Ornish, 1991), and the end of the cold/mass war period of
human history. However, sectarian genocide, industrial profligacy
with genetic modification, and environmental devastation remain
as some of the most grotesque reminders that we are far from achieving
the global transformation of meaning that we cherish.
We can foster the growth of an international community that acknowledges
the fundamental importance of meaning. We can help to promote
it as a rubric for education, research, policy formulation, and
transformation. This will help to establish a global dialogue
to ensure that learning systems are created that can lead to practical
down-to-earth problems being addressed and transformed. Language
is all important as the vehicle for these ideas. Metaphors are
powerful linguistic tools for understanding and comparing complex
systems. In pursuing their professional and social aims, physicians
and surgeons, for example, adopt metaphors such as "warring
against cancer." This is but one example of a pervasive metaphor
of fighting against diseases. The use of such parallels permits
us to think of pathogens as enemies and doctors and scientists
as valiant soldiers with battles to be won or lost. These metaphors
foster alienation and polarization. Equally powerful and destructive,
is the metaphor of medicine in the marketplace where consumers
purchase their health care, promoting money as the ultimate arbiter
and value.
Better healing metaphors are needed. Ecologic metaphors would
portray disease in an interconnected and interdependent world
of which human beings are a part and in which values such as sustainability
can be emphasized (Goodwin, 1994). We need to see that, because
disease is a manifestation of health, we can work with disease
processes, gain understanding from them, and so use their energies
to facilitate the healing responses that they invoke de facto.
Our culture, as evidenced in medicine, is out of touch with creative
meaning about life and death because of the use of unhealthy (diseased)
metaphors. This is not the case for some medical systems with
their origins in other cultures and branded as "alternative
and complementary" in our own (Jobst and Stacey, 1998). It
follows, therefore, that disease as a manifestation of health
is a potentially radical transformation of metaphor, which could
be the core component in turning destructive diseases of meaning
into aspirational health.
The demand for change in how we educate our children and how we
select, train, and oversee professionals, is being heard throughout
the world. While many people seek incremental change in the care
of acute and chronic diseases, there is now an opportunity for
a quantum change through understanding the importance of meaning
to the experience of illness and the manifestation and treatment
of diseases. Indeed, health may be to our age and the new millennium,
the revolutionary force that reading was to the renaissance. For
this there must be dialoguedialogue capable of creating
meaning and which recognizes that the potential pandemic of diseases
of meaning that lies ahead is paradoxically a great opportunity
to engage in how we might prepare for the future better.
ACKNOWLEDGMENTS
We are grateful to all the following individuals for their involvement
in the discussions mentioned and for their continued vigorous
criticism of the ideas and the prose: Dr. Craig Brown, Dr. James
Ladd Bauer, Ms. Toru Burstall, Ms. Helen Chaloner, Ms. Catherine
Clancy, Ms. Fiona Clancy, Dr. Liz Ellis, Dr. Paul Folca, Professor
Brian Goodwin, Dr. Donald MacLean, Dr. Robert Macintosh, Mr. Johnathan
Peck, Ms. Sheila Pollock, Mr. Ralph Quinlan-Forde, Mr. Huw Richards,
Ms. Kate Roddick, Ms. Patricia Shaw, Mr. Hugo Spowers, Ms. Sarah
Stacey, Mr. Stuart Stillie, Ms. Andie Tompkins, Dr. Martin Twine,
Mr. Aaron Vallance, and Ms. Joan Walton.
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Kim
A. Jobst M.A., D.M., M.R.C.P., M.F.Hom.
EDITOR-IN-CHIEF
E-mail:
kajobst@scienceandhealing.org
Daniel
Shostak, M.P.H., M.P.P. Institute for Alternative Futures
100
North Pitt Street, Suite 235
Alexandria,
VA 22314
E-mail:
danielshos@aol.com
Peter
J. Whitehouse, M.D., Ph.D.
Case Western Reserve University
University Hospitals of Cleveland
Fairhill Center for Aging
1200 Fairhill Road
Cleveland, OH 44120 E-mail: pjw3@po.cwru.edu